{"id":5602,"date":"2023-12-22T13:35:01","date_gmt":"2023-12-22T05:35:01","guid":{"rendered":"https:\/\/jcecc.10u.org\/effectiveness-and-impact\/phase-i-project-2016-2018\/%e7%a4%be%e5%8d%80%e5%ae%89%e5%af%a7%e7%85%a7%e9%a1%a7%e8%a8%88%e5%8a%83\/"},"modified":"2024-07-13T18:08:11","modified_gmt":"2024-07-13T10:08:11","slug":"community-based-eolc-programmes","status":"publish","type":"page","link":"https:\/\/foss.hku.hk\/jcecc\/en\/effectiveness-and-impact\/phase-i-project-2016-2018\/community-based-eolc-programmes\/","title":{"rendered":"Community-based EoLC programmes"},"content":{"rendered":"

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Community-based EoLC programmes<\/i><\/h2><\/div><\/div>[vc_single_image image=”5686″ img_size=”full”][\/vc_column][\/vc_row][vc_row bwd_tbc4vd_show_weekday=”” el_class=”boxshadow mt-5 mb-5″][vc_column]
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Beneficiaries<\/h3><\/div><\/div>[vc_column_text el_class=”txt fs18″]<\/p>\n

The EoLC programmes delivered by four NGOs had benefited altogether 2,392 community-dwelling patients and their family caregivers over the three years. Regarding home-based EoLC services, altogether 777 patients and their family caregivers were served between 2016 and 2018. These patients comprised of 50.7% cancer patients, 18.5% with renal disease, 13% with COPD, and the remaining consists of patients with various non-cancer conditions.<\/p>\n

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Methodology<\/h3><\/div><\/div>[vc_column_text el_class=”txt fs18″]<\/p>\n

To evaluate the outcomes and impacts of the community-base EoLC programmes, a common evaluation framework was developed. Patients and their primary family caregivers were assessed by pre-post-follow up clinical assessment using standardised measurements. For patients, their physical symptoms, depression, anxiety, and practical concerns were assessed by \u201cThe Integrated Palliative Care Outcome Scale\u201d (IPOS) at service intake, one month after service, and three months after the service respectively. For family caregivers, their stress around caregiving was assessed by the \u201cCaregiver Strain Inventory\u201d (CSI) at service intake and three months after the service respectively. Level of grief was assessed by the Chinese \u201cInventory of Complicated Grief\u201d (ICG) at two months after the patient\u2019s death. Apart from clinical assessment, patients and family caregivers were also surveyed for their satisfaction towards services by the research team from the University of Hong Kong.<\/p>\n

Regarding service impact, the medical service utilisation in the last 6 months in life of deceased patients in the community-based EoLC programme was compared to that of deceased end-of-life patients in 2015 in Hong Kong who had a principal diagnosis of cancer, COPD, congestive heart failure, end-stage renal diseases, motor neuron disease, and Parkinson\u2019s disease. These data were retrieved from the Central Panel on Administrative Assessment of External Data (CPAA) of Hospital Authority in a clinical data mining (CDM). With the introduction of EoLC services, it is expected that there would be an impact on the medical service utilisation of patients in the last few months in life.<\/p>\n

In addition, a survey was conducted with \u201ccommunity partners\u201d of the five JCECC EoLC programmes between March and April in 2018. These \u201ccommunity partners\u201d include service agencies, hopsitals, RCHEs and CGATs which have referred clients to the community-based or RCHE EoLC programmes under JCECC Project. This survey aims at exploring the satisfaction level and views of these \u201ccommunity partners\u201d regarding the overall contribution and effectiveness of the JCECC EoLC services.158 completed questionnaires were received after sending out 224 of invitations. The response rate was 70.54%.<\/p>\n

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Achievements<\/h3><\/div><\/div>[vc_column_text el_class=”txt fs18″]<\/p>\n

Patients reported significantly improved quality of life:<\/p>\n