2017年活動

講座簡介

無寃不成父子，無仇不成夫婦，一家人總有不同意見和堅持，有時會造成嫌隙及構成 不解的矛盾。可是，當家庭成員患上晚期疾病，一系列的醫療決定、生活照顧安排及 情緒起伏，難免為家庭帶來衝擊。倘糾纏於過去積怨，會虛渡有限的寶貴家庭相聚時 間，帶來日後的遺憾。是次講座將會解構常見晚期疾病家庭遇到的溝通問題和分歧， 並分享有效的溝通技巧，打破家庭沈默，重塑家庭溫馨時刻，讓彼此能在人生最後旅 程共享美麗時光。

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社區安寧照顧是維持晚期病人及其家人生活質素的重要環節。賽馬會安寧頌社區安寧照顧 基礎課程特別為從事/有興趣從事晚期照顧的專業同工包括護士、社工及治療師等而設。 課程旨在增進專業同工對安寧照顧基礎概念的認識，內容將涵蓋七個範疇，包括安寧照顧 基本概念、全人身心社靈、溝通相處之道、預設照顧計劃、晚期症狀護理、善生善別善終 及自我關顧。通過專家的講解及互動討論，學員能為提供社區安寧照顧服務作出更好的準備。

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Abstract

As contemporary models of bereavement have become more nuanced and empirically informed, so too have the practices available to grief counselors and therapists. This two-day workshop offers in-depth training in several of these techniques, nesting them both within the therapy relationship and in the context of current theories and research that provide flexible frameworks for intervention. Making extensive use of actual clinical videos as well as how-to instruction in the use a numerous therapeutic tools, we will discuss and practice several methods for helping clients integrate the reality of the loss into the ongoing story of their lives, while also reconstructing their continuing bond to their loved one.

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With the growing of ageing population, end-of-life care is an important social issue to address. The JCECC Conference on Collaboration in Creating Compassionate Holistic End-of-Life Care for the Future (安寧照顧研討會：共建美好的全人晚晴照顧) is the first international conference organised by the Jockey Club End-of-Life Community Care Project (JCECC), which aims to share and discuss the latest research and best practices both locally and internationally to create a holistic end-of-life care system and to provide a platform for wisdom exchange and skill sharing among healthcare professionals, staff from residential care home for the elderly, patients, family members and other interested individuals. Eventually, we hope the conference can help to promote the quality of end-of-life care, enhancing the capacity of service providers, as well as raising public awareness in end-of-life care.

Please join us and introduce your expertise and experience with others who share your passion for developing better end-of-life care.

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講座簡介

我們常會為生命中每件大事預早策劃及籌備。那麼，我們是否也可以為人生晚期的醫護照顧先作打算，免除後顧之憂﹖本講座希望提升公眾對「預早計劃晚晴照顧」之認識和介紹一個分享自己對晚晴照顧意願的網站。

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Health care professionals play an eminent role in delivering quality care to patients at the End-of-Life. Communication is an important bridge to understand, respond and meet the physical-psycho-social-spiritual needs of the patients. Since discussing end of life issues is still a taboo for many Chinese, a mixture of verbal and non-verbal communication can reduce the resistance in end of life preparation and enhance patients’ quality of life. This one day workshop not just refreshes the “what to communicate” but focuses more on the skills of “how to communicate” with patients at the EOL. Creative and practical communication skills integrated with theories and evidence based knowledge will be delivered to the participants.

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Workshop on Addressing Moral Distress in End-of-Life Decision Making

Moral distress is described as a phenomenon in which one knows the right action to take, but is constrained from taking it. This phenomenon is not uncommon among healthcare professionals facing end-of-life challenges. What is moral distress? Who is vulnerable? How is it recognized? What are the barriers? What can be done about it? The workshop will help participants explore all these questions to a deeper understanding as well as explore means to effect change.

Workshop on Clinical Ethics and Advance Care Planning (ACP)

Discussions on end-of-life care from the perspective of clinical ethics can facilitate positive outcomes in improving the quality of care provided. Early engagement of patients with a life limiting condition in advance care planning can improve patient and family satisfaction. This workshop will provide a platform for participants to understand these two interrelated concepts and to explore an appropriate approach in the provision of End-of-Life care.

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Bereavement care is for supporting those who are affected by the death of their family members or close friends. It is an integral part in end-of-life care. Though majority of bereaved persons can work through their own grief without support from professional help, the process of grief can be devastating and stressful. This one day training will offer an overview of grief process, leading grief theories and bereavement care. Specifically, the risk and outcome assessment of grief will be introduced. Basic bereavement care intervention will be shared and practice.

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How to communicate with patients and family members remains one of the core issues in the provision of quality end-of-life care. Good communication involves both spoken words and unspoken feelings and emotions. This three-day workshop is specifically designed for health and social care professionals who want to develop their awareness and sensitivity towards unspoken (implicit) emotions in the communication process. Through experiential, reflective, and practice-based activities, this workshop will enable you to understand what makes emotions difficult to handle, and enhance your competence in responding to the unspoken (implicit) emotions in interactions with patients and family members.

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This one-day professional workshop will provide participants with a unique opportunity to experience FDI that is grounded in empirical research. Through role-plays and experience sharing, participants will learn the skills and technique of FDI for facilitating open dialogue between terminal patients and their family carers that promote appreciation and reconciliation, foster relational bonds, and cultivate transcendental wisdoms to be shared across generations through the creation of a family legacy document.

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Patients with advanced or incurable cancer often express the need for professional help to cope with their complex situation. Furthermore, the support of health care professionals may often be dominated by symptom treatment and its effectiveness and less on the kinds of needs that patients and families consider most important. Distress is a significant problem for individuals who are living with cancer. Responding effectively requires therapeutic sensitivity and skill. This workshop will discuss a model that draws on elements of therapeutic presence and the integration of therapists’ personal characteristics to provide effective communication and psychosocial care of patients who are experiencing cancer-related distress.

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Couple based interventions at the end of life may identify gaps in communication about end-of-life issues; facilitate a sharing of new understandings; reduce levels of distress; provide an opportunity for relational growth; while preparing the partner for bereavement. Participants will be introduced to an intervention that was developed and piloted using the Patient Dignity Inventory (PDI) as the focus of a 1-hour clinical interview. The intervention may be an important adjunct in helping to prepare the couple for the challenges inherent toward the end of life. The focus of the clinical interview around the PDI provides a structure which may be particularly acceptable for men.

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安寧照顧講座：心安家寧我有 Say 談及安寧照顧，不少人認為是由安寧照顧團隊作主導。你可有想過晚期病人及家人才是安寧服務的「主角」，可以更主動參與醫療及照顧決定，甚至是安寧團隊的照顧伙伴？是次講座請來 Elizabeth Lobb 教授分享病人為本安寧照顧服務的重要元素，更會與謝建泉醫生、 黃譚智媛醫生及周燕雯博士討論醫護照顧團隊、晚期病人及家人如何共同參與醫療及照顧決定。

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Providing dignified end-of-life care is the key to improve quality of life of patients and family members. This one-day workshop is specially designed for health and social care professionals who are dedicated to preserving dignity in end-of-life care. It will introduce the model of Relational Personhood for understanding dignity among Chinese elderly. Participants will learn theory, assessments, and practice protocol for an advance care intervention developed based on this model.

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Techniques in play therapy can be useful for helping patients and family members to deal with crises and emotions at end-of-life. This workshop is specially designed for health and social care professional who are interested in applying play therapy in end-of-life care settings. It will introduce the use of multiple techniques in play therapy including therapeutic games and guided imagery. Participants will learn the ACTIVE approach for facilitating discussion on death and dying, as well as the evidence-based LEGACY approach for building legacy projects such as photographic narration.

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This one-day workshop will introduce outcome measurements in palliative care to multiple professional team members including doctors, nurses, social workers, psychologists, spiritual workers and so on. It will provide an overview of the rationale of using outcome measures, their role in improving quality of care, the science underpinning outcome measurements in palliative care, how to implement outcome measures in routine practice, and examples of global use of POS family measures. This workshop will be interactive and provides opportunities for participants to discuss the importance and use of outcome measures.

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There are difficult choices in deciding where to be cared for at the end of life. End-of-life care at the residential or long-stay care homes are often seen as complicated and challenging. This professional symposium is designed for health and social care professionals who are interested in understanding different community end-of-life care options. Experts in end-of-life care from the Haven of Hope Sister Annie Holistic Care Centre, Society for the Promotion of Hospice Care, and the Hong Kong Association of Gerontology will share their rich practical experiences that facilitate “choices” beyond caring at hospitals. After the symposium, participants will be invited to visit the newly commissioned “The Jockey Club Home for Hospice”.

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Bereavement care is for supporting those who are affected by the death of their family members or close friends. It is an integral part in end-of-life care. Widowhood is a common life experience in older population. This two-day workshop targeted at health and social care professionals who will use bereavement group in supporting bereaved persons. It will introduce the Dual Process Model (DPM), a leading theory in the field, and the evidence based group intervention developed based on this model. Participants will learn about the design, the practical skills and the impact of this intervention model applied in the Hong Kong Chinese context.

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When it comes to end-of-life, the suffering brought by life-limiting illnesses often shadows the rich and valuable life experiences over the life course. This two-day workshop is specially designed for health and social care workers who are interested in using Narrative Therapy (NT) as an effective approach to help patients at end-of-life to reframe on illness experience and bring out goodness of life. Participants will learn theoretical knowledge and practical skills in using the metaphor of ‘Tree of Life’ to help patients to reconnect unique life events to make sense of one’s existence and meaning of life.

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Patients with life-limiting illnesses experience symptoms such as pain and sleep disturbance. This two-day training workshop targeted at health and social care professionals with basic knowledge on counselling skills or health care. It will introduce an evidence-based and theory-driven self-hypnosis approach to address clients’ needs on pain management and sleeping improvement. Participants will learn practical self-hypnosis skills and its application in the local context through experiential learning exercises.

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Demoralization is a mental state of low morale and poor coping associated with hopelessness-helplessness, meaninglessness and pointlessness, which potentially leads to a desire to die. It is distinct from depression, but can occur co-morbidly with adjustment and depressive disorders. This half-day training workshop is specially designed for health and social care professionals who are interested in demoralization. It will provide an overview on demoralization in end-of-life care settings and risk factor associated with demoralization. Participants will be invited to review clinical vignettes to determine optimal diagnoses and management plans. The innovative Meaning and Purpose (MaP) Therapy will be introduced to help patients at end-of-life to sustain focus on living, identify the many sources of meaning and fulfilment, and thus better negotiate through advanced illnesses.

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Agenda setting, use of circular questions and delivery of integrative summaries are key techniques that enhance outcomes from family meetings. Rather than clinicians being the source of empathic support, it needs to be fostered from family members. Screening of family functioning helps discern which families are dysfunctional or in greater need. This one-day workshop is specially designed for health and social care professionals who are interested in applying family-focused grief therapy in end-of-life care. It will describe a program of preventive family therapy for families at risk to prevent prolonged grief disorder and depression. Participants will learn practical skills to maintain safety, reduce conflict and facilitate openness of family communication through interactive role-play exercises.

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How to communicate with patients and family members remains one of the core issues in the provision of quality end-of-life care. Good communication involves both spoken words and unspoken feelings and emotions. This three-day workshop is specifically designed for health and social care professionals who want to develop their awareness and sensitivity towards unspoken (implicit) emotions in the communication process. Through experiential, reflective, and practice-based activities, this workshop will enable you to understand what makes emotions difficult to handle, and enhance your competence in responding to the unspoken (implicit) emotions in interactions with patients and family members.

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Family members are actively involved in improving quality of life and quality of care for patients at end-of-life. Achieving a balance between the best interest of patients, their preferences and the preferences of other family members is often a complex and distressing process in which a lot of family conflicts arise. This two-day workshop is specially designed for health and social care professionals who are interested in facilitating family interactions and communication at end-of-life. Participants will learn theories and skills related to family communication, and the use of family strengths and resources to handle distress and complicated situations, through role play and interactive discussion.

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「媽媽和我的小事」微電影簡介

如果你的生命只剩下三個月的限期，你會做甚麼？去旅行？陪伴家人？還是當甚麼事都沒 發生過？面對臨終安寧照顧的決擇，對局外人來說可能只是一件「媽媽和我的小事」，但 對艾雯（周家怡飾）與珍（邵音音飾）而言，卻是影響他們之間關係，甚至他們生活質素 的「大事」。尊重及良好的溝通，如何讓艾雯與珍達至「心安‧家寧」？

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Advanced illnesses shattered fundamental life assumptions of patients and family members and led to existential crises. This two-day workshop is specially designed for health and social care professionals who are interested in enhancing sense of meaning of life among patients and family members in end-of-life. It will introduce the logotherapy approach by Vitkor Frankl for helping people to search for meaning in times of life challenges and sufferings. Participants will learn theories and practical skills for applying logotherapy in end-of-life and bereavement care.

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Advance care planning (ACP) is a process of planning for future medical care in the event that an individual is unable to make his or her own medical decisions. ACP assists an individual in preparing for a sudden unexpected illness or injury, as well as death and dying. This two-day workshop will introduce ACP as a communication process when a person is healthy and well and/or earlier in the patient’s disease course. The ultimate goal of such approach is to improve shared decision-making, specifically by framing ACP as a wellness initiative. It will also clarify the differences between advance directives and medical orders.

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預設晚期照顧計劃是安寧照顧服務的重要一環，確保病人的意願及價值觀在照顧的過程中的得到 尊重。不過，大部分人都認為只有在生命晚期才會考慮到預設晚期照顧計劃。是次講座請來 Patricia Bomba 醫生、陸嘉熙醫生、廖進芳女士及周燕雯博士，討論預設晚期照顧計劃如何提升病 人及家人的生活質素，並分享如何在日常生活中就預設晚期照顧計劃展開對話。

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Providing care for patients can be an emotionally dwelling process which led to distress and burnout. Evidence has showed that burnout can have detrimental impact on quality of life and work performance of care professionals. This one-day workshop specially designed for health and social care professionals will address the importance of burnout in end-of-life care. Participants will learn practical skills for reducing burnout and self-care.

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Communicating with family members of patient at end of life can be challenging. Family assessment is useful to identify family structure, dynamics, dysfunction, needs and resources which guides the formulation of intervention plan. This one-day workshop is specially designed for health and social care professionals who are interested in family work. Participants will learn theories, effective strategies and practical skills on conducting family assessment.

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